Full-Time
The ALS Association
The ALS Association
201-500 employees
Advances ALS research and supports patients
Compensation Overview
$50.6k - $79.3k/yr
St. Louis, MO, USA
In Person
 Medical, Clinical & Veterinary (1) |
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- Bachelor’s degree in Social Work, Nursing, Human Services, Case Management, or a closely related field with relevant experience in psychosocial support, care coordination, or case management.
- Master’s degree in Social Work preferred.
- Minimum of 4 years of related professional experience and/or training, or equivalent combination of education and experience.
- Demonstrated ability to utilize management skills such as problem-solving, solid reasoning, critical thinking, budget/program planning, performance improvement, organizational planning, implementing, and monitoring performance standards.
- Knowledge of ALS is a plus, but not required.
- Experience with progressive neurodegenerative disease.
- Knowledge of Medicare, Medicaid, patient assessment skills, planning and case management preferred
- Conducts specialized care consultations and needs assessments for people living with ALS caregivers, and families experiencing complex needs/situations or expertise area.
- Actively manage a portfolio of clients, assuring client and caregiver needs are met within the capabilities of The ALS Association. May manage field staff in assigned territory to ensure that people living with ALS, caregivers, families are receiving the programs and services they need.
- Provide information on programs, services, resources and printed/electronic educational materials and may have responsibility for oversight of program(s).
- Coordinate referrals to and partnerships with healthcare providers and community agencies.
- Evaluate, facilitate (as needed) and ensure the effectiveness of support groups in meeting the needs of the ALS community.
- In collaboration with the CS Director and Managing Director plan the implementation of the program outcomes and evaluation process.
- Ensure quarterly contact/engagement with those living with ALS and/or their caregivers.
- Document all pertinent engagements with persons living with ALS, family, caregivers, or other healthcare professionals and ensure Care Services staff is documenting all engagements as per Care Services Standards.
- Responsible for educating and informing the general public and professionals about the nature of ALS, its management, related research, and the services and mission of The ALS Association.
- Serve as a member of the ALS Clinic multidisciplinary team and function as the liaison between the clinic and The Association; develop and maintain clinic relationships through ongoing interactions with clinic directors and team.
- Provide professional in-service educational programs to ALSA staff and healthcare professionals such as: home health and hospice agencies, Durable Medical Equipment (DME) providers, and Skilled Nursing Facilities.
- Participate in continuing education seminars, workshops, and conferences as available and necessary to gain knowledge on related topics.
- Provide mentoring opportunities to new staff.
The ALS Association is a national nonprofit organization dedicated to fighting ALS on multiple fronts. It leads global research efforts, provides assistance to people with ALS through a nationwide network, coordinates multidisciplinary care via certified clinical care centers, and builds government partnerships to advocate for policies and funding. Its programs include funding and guiding research, offering patient and caregiver support, coordinating clinical care to ensure access to specialized services, and advocating for public policy and resources. This approach is distinct because it combines research leadership, direct services, and policy advocacy under one umbrella, with a nationwide network and dedicated ALS Nexus platform to connect patients, researchers, and clinicians. The goal is to discover new treatments and a cure for ALS while improving quality of life and expanding access to care for those affected.
Company Size
201-500
Company Stage
N/A
Total Funding
N/A
Headquarters
N/A
Founded
1985
Get referred to The ALS Association
See people who can refer or advise you
Simplify's Take
What believers are saying
- Walk to Defeat ALS expands fundraising and community engagement.
- University of Miami partnership showcases promising genetic treatment progress.
- Hoffman Clinic Awards extend coordinated care into underserved communities.
What critics are saying
- ALS remains fatal, sustaining long-term donor fatigue pressure.
- Only half of registered patients receive coordinated care, exposing rollout failures.
- Research breakthroughs can stall, weakening credibility and high-value donor retention.
What makes The ALS Association unique
- Largest philanthropic funder of ALS research worldwide.
- Combines research, care, advocacy, and family support nationwide.
- Operates certified clinical care centers and multidisciplinary care networks.
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Benefits
Health Insurance
401(k) Company Match
Disability Insurance
Life Insurance
Wellness Program
Paid Vacation
Paid Holidays
Company News
Statement from the ALS Association on Chris Johnson's ALS Diagnosis. Arlington, Va. (June 29, 2026) - We are deeply moved by the courage Chris Johnson has shown in sharing his ALS diagnosis with the world. We stand with Chris, his wife Brittany, and their family as they navigate this incredibly difficult journey. "I still think the same. I still dream. I still love my family. My body just doesn't cooperate." Chris's words capture something we hear from so many people living with ALS. We are inspired by his determination to fight, and by his commitment to using his platform to raise awareness for the ALS community. What people need to know about ALS: * ALS is a fatal neurodegenerative disease that gradually takes away a person's ability to walk, speak, swallow, and eventually breathe. It affects the motor neurons in the brain and spinal cord that control voluntary movement. As those neurons deteriorate and die, the brain loses its ability to initiate and control muscle movement. * ALS does not discriminate. As Chris noted, his case is sporadic ALS - meaning it occurred with no family history. About 90% of all ALS cases are sporadic. * Every 90 minutes, someone in the United States is diagnosed with ALS - and someone loses their battle with it. * The ALS Association has a strategic plan to make ALS livable and cure it. To get there, we need to accelerate research, optimize current treatments and care, and reduce the harms of ALS. * ALS can be difficult to diagnose. There is no single test that confirms ALS. Because its early symptoms - muscle weakness, slurred speech, difficulty gripping - can resemble other conditions, people often see multiple specialists before receiving a confirmed diagnosis. This delay can mean lost time for treatment and support, which is why the ALS Association developed the thinkALS tool to help clinicians identify and refer patients to ALS specialists sooner. * There is currently no cure for ALS, and it is fatal. The typical life expectancy following a diagnosis is typically two to five years, though every journey is unique. * Research is making promising advancements and there is real reason for hope. We invested in early antisense technology which led to development and FDA approval to Qalsody (tofersen), the first-ever gene-targeted therapy for ALS. There is evidence that Qalsody(R) may not just slow disease progression, but in some cases help reverse some of the lost function, something that scientists did not think possible. * Chris has said he is participating in a clinical trial, reflecting the growing pipeline of promising treatments the ALS Association is proud to help fund. We are committed to accelerating the path from scientific discovery to treatments that reach every person living with ALS. Our mission - and how you can help. The ALS Association's mission is to make ALS livable and cure it. Here is how you can make a difference: * Learn more about ALS and share Chris's story * Donate to ALS research * If you or a loved one has been diagnosed, contact us. The ALS Association offers care services, support groups, and connections to certified treatment centers across the country. * Call our helpline at 1-800-782-4747 or visit ALS.org To Chris: thank you for choosing to fight - not just for yourself, but for the tens of thousands of Americans living with ALS today. We are honored to walk this road alongside you. About the ALS Association The ALS Association is the largest ALS organization in the world. The ALS Association funds global research collaborations, assists people with ALS and their families through its nationwide network of care and certified clinical care centers, and advocates for better public policies for people with ALS. The mission of the ALS Association is to make ALS livable and cure it. For more information about the ALS Association, visit our website at www.als.org. About ALS Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord. Over the course of the disease, people lose the ability to move, to speak, and eventually, to breathe. The disease is always fatal, usually within five years of diagnosis. Few treatment options exist, resulting in a high unmet need for new therapies to address functional deficits and disease progression. Manager, Communications June 29, 2026 Article Topic ALS Mission ALS Awareness