The Patient & Community Educator (PACE) is a critical component of the product brand commercial strategy and works in close coordination with Field Sales, Field Reimbursement, Patient Services, Advocacy, and Marketing teams to support Acadia’s patient-focused vision. The PACE is responsible for educating patients, caregivers, families on disease state and product information to help empower them as they navigate through their disease journey. Using approved materials, the PACE will educate on the disease state, DAYBUE treatment, and Acadia services, through phone-based, in-person, and virtual meetings.

Primary Responsibilities:

• Caregiver Engagement - Identify and leadregional education efforts to provide disease-state and treatment education to patients, Caregivers, Care team members and community groups
• Engage with Patient Advocacy groups to impact education of Acadia product(s) for Rett syndrome
• Act as a commercial liaison on caregiver engagement across departments including Sales, Medical Affairs, Advocacy and Marketing
• Understands individual needs of patients and Caregivers and develops an appropriate education and resource plan of action
• Provides 1:1 education through virtual and in-person meetings
• Manages caregiver mentor program
• Caregiver Speaker Programs - Executes educational programs in person through regional events and virtually through webinar events
• Interprets and translates scientific clinical data into patient-friendly language
• Moderates Caregiver Speaker programs coordinating all speakers: HCP, Family Access Manager and Caregiver Speakers
• Contributes to Caregiver Speaker program strategy, content exploration and development, speaker identification, selection and utilization
• Partners with Advocacy and sales team to identify opportunities for programs
• Act as lead for speaker development and feedback including coaching and point of contact for any speaker program issues and updates
• Support speaker program, webcast, and other key launch/marketing tactics
• Caregiver Advisory Boards
• Support marketing team on Caregiver advisory board planning with the identification, coordination and contracting of appropriate attendees
• Insight generation – Monitors Caregiver opinions and sentiment about current treatment patterns that may impact Acadia and provide feedback for consideration in the development of brand strategic plans
• Identifies and summarizes key insights from events
• Identifies educational gaps and insights that help inform the refinement and development of patient education resources
• Measures the impact of PEL marketing activities on a continual basis and adjusts course where appropriate.
• Develops and delivers presentations as needed to commercial management and other internal groups.
• Actively collaborates with Field Sales, Patient Services, Medical Affairs, Marketing, Advocacy and other critical internal teams to increase disease-state awareness and early diagnosis
• Maintains disease-state and product expertise through continuing medical education and attendance at relevant symposia, conferences and other educational opportunities
• Ensures that all actions, both internally and externally working on Acadia’s behalf are in compliance with all laws regulations, policies and demonstrates Acadia values

Education/Experience/Skills:Bachelor of Science in healthcare field strongly preferred with a minimum of 8 years’ experience in a similar role within the pharmaceutical/biotech industry. Healthcare background and rare disease experience preferred. An equivalent combination of relevant education and experience may be considered.

• Bachelor’s Degree (required)
• Prior experience in patient education, clinical setting, pharmacy or community health education preferred
• Experience supporting and providing education to patients, family members, and community groups affected by rare diseases
• Demonstrated communication skills, including ability to deliver and present both virtually and in person
• Exceptional interpersonal skills, professional communications, problem-solving, compassion and the ability to navigate difficult conversations
• Ability to translate scientific/medical information into patient-friendly language
• Desire to innovate and work in a fast-paced, energetic environment
• Self-starter who is highly passionate about rare disease
• Strong understanding of industry legal, regulatory, and compliance landscape
• This is a field-based role. Approximately 60% local/regional travel required by business which may include weekends so proximity to a major airport within the territory is a must to ensure quick connectivity to air transport hubs
• Fluent in both English and Spanish is a plus

Physical Requirements:

While performing the duties of this job, the employee is regularly required to stand; walk; sit; use hands to finger, handle, or feel; reach with hands and arms; climb or balance; stoop, kneel, crouch, see, talk or hear in a standard office environment and independently from remote locations. Employee must occasionally lift and/or move up to 20 pounds. Ability to travel by car or airplane independently overnight up to 60% of the time and work after hours if required by travel schedule or business issues.

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