Full-Time

Data Governance Specialist

Confirmed live in the last 24 hours

CDC Foundation

CDC Foundation

1,001-5,000 employees

Supports public health initiatives and organizations

Government & Public Sector
Social Impact
Healthcare

Compensation Overview

$81k - $117.9kAnnually

Mid

Remote in USA

Must be based in the United States.

Category
Public Health
Biology Lab & Research
Biology & Biotech
Requirements
  • Bachelor’s degree in Data Management, Public Health, Information Systems, or a related field.
  • Master’s degree in a relevant field is preferred but not required.
  • 5+ years of experience in data governance, data management, or a related role, with a focus on public health, healthcare, or government data systems.
  • Demonstrated experience in developing and implementing data governance frameworks, policies, and procedures.
  • Experience working with data sharing agreements (DUAs, DSAs) and ensuring compliance with data privacy and security standards.
  • Familiarity with public health data systems and practices, including the handling and governance of sensitive and protected health information (PHI).
  • Significant experience working with legal teams on data governance and data sharing agreements is highly desirable.
  • In-depth knowledge of data governance principles and best practices, including data lifecycle management, data privacy, security, and information sharing protocols.
  • Proficiency with platforms such as SharePoint or other document management systems for organizing data use agreements, policies, and collaborative workflows.
  • Experience with data standardization initiatives, including developing and implementing business glossaries, data dictionaries, and standardized data terms.
  • Understanding of Social Determinants of Health (SDOH), principles of data equity, and how these integrate with public health program goals and public health data systems is advantageous.
  • Strong written and verbal communication skills, with the ability to facilitate collaborative discussions and lead meetings with diverse stakeholders, including public health officials, data stewards, subject matter experts, IT professionals, and legal teams.
  • Experience developing and implementing training programs to educate teams on data governance policies, procedures, and best practices.
  • Proven ability to work in cross-functional teams and build consensus around complex data governance initiatives.
  • Previous experience in project management, including developing and managing work breakdown structures (WBS), timelines, and deliverables.
  • Ability to manage multiple projects simultaneously, ensuring timely delivery of data governance milestones and adherence to project goals.
  • Understanding of data privacy laws and regulatory requirements related to public health data, including HIPAA and other relevant privacy regulations.
  • Experience in working with legal teams to draft, review, and implement data use agreements and data sharing frameworks.
Responsibilities
  • Lead the identification of gaps in current HDOH data governance policies and procedures, develop a core list of new ones to be created based on this gap analysis.
  • Develop a core set of data governance policies and procedures, in collaboration with HDOH stakeholders, that facilitate standardized data sharing and usage.
  • Research and apply best practices from other jurisdictions, adapting them to meet the specific requirements of HDOH, inclusive of data governance and health equity.
  • Identify, codify, and implement workflows and automated processes in SharePoint for data sharing frameworks used within HDOH.
  • Draft, revise, and implement standardized agency-wide data sharing frameworks, ensuring alignment with public health data needs and organizational goals for reducing barriers to secure, appropriate data exchange.
  • Facilitate collaborative meetings with HDOH stakeholders to refine data sharing workflows, draft templates, implement, and evaluate the effectiveness of policies.
  • Maintain a Data Use Agreement (DUA) and Data Sharing Agreement (DSA) library in SharePoint, and work with legal teams to standardize templates for future agreements.
  • Convene meetings with stakeholders to establish and standardize data terms, business glossaries, and equity elements for HDOH data management.
  • Pilot the implementation of these standardized data reference dictionaries, terms, and glossaries, training HDOH staff on their use.
  • Continue to expand and roll out additional data dictionaries, terms, glossaries, and Social Determinants of Health (SDOH) measures across HDOH.
  • Develop and implement a communications plan for educating HDOH staff on data governance standards and frameworks.
  • Conduct training sessions with HDOH staff on data sharing frameworks, DUAs, DSAs, and standardized data references.
  • Ensure that all new staff are trained on data governance processes and that data governance standards are maintained through continuous communication and updates.

The CDC Foundation enhances public health by supporting the CDC, particularly in combating COVID-19 through community-based organizations (CBOs). These CBOs help spread crucial prevention messages and ensure equitable vaccine access in local communities. The Foundation raises funds through donations and partnerships, which are used for emergency responses, educational programs, and technical assistance. Its goal is to leverage community strengths to effectively address public health challenges and ensure vital health resources reach those in need.

Company Stage

N/A

Total Funding

N/A

Headquarters

Atlanta, Georgia

Founded

1992

Growth & Insights
Headcount

6 month growth

-4%

1 year growth

-4%

2 year growth

-4%
Simplify Jobs

Simplify's Take

What believers are saying

  • The CDC Foundation's strong reputation and consistent high ratings provide a stable and trustworthy work environment.
  • Collaborations with diverse partners, including the White House and various public and private entities, offer employees unique opportunities to engage in high-impact public health initiatives.
  • The Foundation's efforts in addressing health disparities and promoting equitable vaccine access contribute to meaningful and rewarding work experiences.

What critics are saying

  • Dependence on donations and grants can lead to financial instability, especially during economic downturns.
  • The Foundation's close association with the CDC may subject it to political and public scrutiny, potentially affecting its operations and reputation.

What makes CDC Foundation unique

  • The CDC Foundation uniquely supports the CDC, leveraging philanthropic and private sector resources to enhance public health initiatives, unlike other nonprofits that may not have such direct governmental ties.
  • Their consistent 4-star rating from Charity Navigator for 18 consecutive years underscores their financial efficiency, transparency, and trustworthiness, setting them apart in the nonprofit sector.
  • The Foundation's focus on community-based organizations ensures that public health messages and resources reach deeply embedded local communities, enhancing their impact.

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