Full-Time
Advances ALS research and supports patients
$135k - $155k/yr
Remote in USA
Hybrid
Remote from a major metropolitan market, with travel to Association offices, territories, conferences, and other events as needed.
PhD
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The ALS Association is a national nonprofit organization dedicated to fighting ALS on multiple fronts. It leads global research efforts, provides assistance to people with ALS through a nationwide network, coordinates multidisciplinary care via certified clinical care centers, and builds government partnerships to advocate for policies and funding. Its programs include funding and guiding research, offering patient and caregiver support, coordinating clinical care to ensure access to specialized services, and advocating for public policy and resources. This approach is distinct because it combines research leadership, direct services, and policy advocacy under one umbrella, with a nationwide network and dedicated ALS Nexus platform to connect patients, researchers, and clinicians. The goal is to discover new treatments and a cure for ALS while improving quality of life and expanding access to care for those affected.
Company Size
201-500
Company Stage
N/A
Total Funding
N/A
Headquarters
N/A
Founded
1985
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Health Insurance
401(k) Company Match
Disability Insurance
Life Insurance
Wellness Program
Paid Vacation
Paid Holidays
The 2026 Walk to Defeat ALS Nashville returns to music city on October 3 at Nissan Stadium. Home " News " The 2026 Walk to Defeat ALS Nashville returns to music city on October 3 at Nissan Stadium. Community Invited to Unite in the Fight Against ALS at Nashville's Largest ALS Awareness and Fundraising Event NASHVILLE, Tenn. - The ALS Association is proud to announce the return of the 2026 Walk to Defeat ALS Nashville, presented by Beaman Toyota, on Saturday, October 3, 2026, at Nissan Stadium - Parking Lot H. The annual event will bring together individuals living with ALS, caregivers, families, volunteers, sponsors, and community members from across Middle Tennessee to raise awareness and critical funds in the fight against ALS. The Walk to Defeat ALS Nashville celebrates the strength and resilience of the ALS community while providing participants with an opportunity to honor loved ones, remember those lost to the disease, and stand together in pursuit of a world without ALS. Today, The ALS Association is actively serving more than 330 individuals living with ALS across Tennessee through comprehensive Care Services, including support groups, durable medical equipment and single-use item programs, care consultations, advocacy efforts, and investments in groundbreaking research. As the number of families diagnosed with ALS continues to grow, community support has never been more important. "Every step taken at the Walk to Defeat ALS represents hope for families facing this devastating disease," said Cody Filbert, Development Manager for The ALS Association. "While research is bringing us closer to effective treatments and ultimately a cure, families need support today. Funds raised through the Walk directly help provide critical care services while also advancing research and advocating for policies that improve the lives of those living with ALS." Participants of all ages and abilities are encouraged to register as individuals or create a Walk Team with family, friends, coworkers, schools, faith communities, or civic organizations. Local businesses are also invited to join the movement by becoming event sponsors, forming corporate Walk Teams, or volunteering on Walk Day. The event will feature an inspiring opening ceremony, a one-mile accessible walk, family- friendly activities, sponsor exhibits, food, entertainment, and opportunities to connect with the local ALS community. Event Details * Event: 2026 Walk to Defeat ALS Nashville * Date: Saturday, October 3, 2026 * Location: Nissan Stadium - Parking Lot H * Presenting Sponsor: Beaman Toyota * Registration: Opens at 10:30 a.m. * Opening Ceremony: 11:30 a.m. * Walk Begins: 11:45 a.m. Registration is free, and participants are encouraged to fundraise in support of The ALS Association's mission to discover treatments and a cure for ALS while serving, advocating for, and empowering people affected by the disease. About The ALS Association The ALS Association is the largest philanthropic funder of ALS research in the world and is committed to making ALS a livable disease while advancing global research toward effective treatments and a cure. Through comprehensive Care Services, advocacy, and research, The ALS Association supports individuals living with ALS and their families every step of the way.
Statement from the ALS Association on Chris Johnson's ALS Diagnosis. Arlington, Va. (June 29, 2026) - We are deeply moved by the courage Chris Johnson has shown in sharing his ALS diagnosis with the world. We stand with Chris, his wife Brittany, and their family as they navigate this incredibly difficult journey. "I still think the same. I still dream. I still love my family. My body just doesn't cooperate." Chris's words capture something we hear from so many people living with ALS. We are inspired by his determination to fight, and by his commitment to using his platform to raise awareness for the ALS community. What people need to know about ALS: * ALS is a fatal neurodegenerative disease that gradually takes away a person's ability to walk, speak, swallow, and eventually breathe. It affects the motor neurons in the brain and spinal cord that control voluntary movement. As those neurons deteriorate and die, the brain loses its ability to initiate and control muscle movement. * ALS does not discriminate. As Chris noted, his case is sporadic ALS - meaning it occurred with no family history. About 90% of all ALS cases are sporadic. * Every 90 minutes, someone in the United States is diagnosed with ALS - and someone loses their battle with it. * The ALS Association has a strategic plan to make ALS livable and cure it. To get there, we need to accelerate research, optimize current treatments and care, and reduce the harms of ALS. * ALS can be difficult to diagnose. There is no single test that confirms ALS. Because its early symptoms - muscle weakness, slurred speech, difficulty gripping - can resemble other conditions, people often see multiple specialists before receiving a confirmed diagnosis. This delay can mean lost time for treatment and support, which is why the ALS Association developed the thinkALS tool to help clinicians identify and refer patients to ALS specialists sooner. * There is currently no cure for ALS, and it is fatal. The typical life expectancy following a diagnosis is typically two to five years, though every journey is unique. * Research is making promising advancements and there is real reason for hope. We invested in early antisense technology which led to development and FDA approval to Qalsody (tofersen), the first-ever gene-targeted therapy for ALS. There is evidence that Qalsody(R) may not just slow disease progression, but in some cases help reverse some of the lost function, something that scientists did not think possible. * Chris has said he is participating in a clinical trial, reflecting the growing pipeline of promising treatments the ALS Association is proud to help fund. We are committed to accelerating the path from scientific discovery to treatments that reach every person living with ALS. Our mission - and how you can help. The ALS Association's mission is to make ALS livable and cure it. Here is how you can make a difference: * Learn more about ALS and share Chris's story * Donate to ALS research * If you or a loved one has been diagnosed, contact us. The ALS Association offers care services, support groups, and connections to certified treatment centers across the country. * Call our helpline at 1-800-782-4747 or visit ALS.org To Chris: thank you for choosing to fight - not just for yourself, but for the tens of thousands of Americans living with ALS today. We are honored to walk this road alongside you. About the ALS Association The ALS Association is the largest ALS organization in the world. The ALS Association funds global research collaborations, assists people with ALS and their families through its nationwide network of care and certified clinical care centers, and advocates for better public policies for people with ALS. The mission of the ALS Association is to make ALS livable and cure it. For more information about the ALS Association, visit our website at www.als.org. About ALS Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord. Over the course of the disease, people lose the ability to move, to speak, and eventually, to breathe. The disease is always fatal, usually within five years of diagnosis. Few treatment options exist, resulting in a high unmet need for new therapies to address functional deficits and disease progression. Manager, Communications June 29, 2026 Article Topic ALS Mission ALS Awareness
South Florida woman turns ALS diagnosis into mission to inspire others to fight. By Najahe Sherman CBS News Miami June 23, 2026 7:20 PM Gift Article Surrounded by family, friends and supporters, this year's Walk to Defeat ALS champion, Lourdes Machado, was shining with hope. Diagnosed with ALS in May 2025, she has turned her journey into a mission to raise awareness and inspire others in the fight against the disease. "Obviously, there's no cure, and that's why we're walking," Machado said. "We're walking so no one else has to go through this again, and so I can spend more time with my daughter and be there for her." By her side through every challenge has been her mother, Marianela Perez, serving as both caregiver and unwavering source of strength. When she first learned of her daughter's diagnosis, Perez said she wanted her daughter to know she was not alone. "I wanted to say I love you a lot and I'm going to be here for you and here to support you," Perez said. "And I've done it for the last year, and I will continue to do it. I'm very proud of her. Very proud." The ALS Association is helping families like Machado's while also investing in groundbreaking research through its partnership with the University of Miami. Researchers are working to unlock new treatments. Dr. Nathan Carberry, an assistant professor of neurology at the University of Miami, said scientists are seeing encouraging progress in genetic treatments that have improved patients' strength. A development that was once thought impossible. "I liken it to the moon landing, where we're really seeing, finally, a true impact on a neurodegenerative disease, which is really powerful," Carberry said. For families facing ALS, breakthroughs like these are delivering something that once felt out of reach - hope. The money raised through the Walk to Defeat ALS helps families access resources, support and care. The organization welcomes support year-round. This report was produced by Miami Herald news partner CBS News Miami.
The ALS Association has awarded $3 million through its Hoffman ALS Clinic Awards Programme to expand access to multidisciplinary ALS care in underserved American communities. Currently, only around half of registered people living with ALS receive coordinated team-based care, which has been proven to extend survival and improve quality of life. The grants, funded by the late Hugh Hoffman's historic $58 million gift, will support seven clinics across underserved regions including Hawaii, Alaska, Northwest Indiana, Central Texas, rural Kansas and Southern New Jersey. Awards range from $360,000 to $900,000 over three years. Recipients will establish new ALS clinics or expand existing ones, adding clinic days, enhancing telehealth services and reducing financial barriers. The initiative aims to close the care gap for patients in rural and geographically isolated areas.
Pasithea Therapeutics' stock surged 117% after announcing a $1 million ALS grant and a major equity offering. The company plans to offer up to 75 million shares at $0.80 each and 75 million pre-funded warrants at $0.799 each. The ALS Association's grant will support the first study of PAS-004 in ALS patients. PAS-004 is also advancing in trials for solid tumors and neurofibromatosis. Retail sentiment on Stocktwits was extremely bullish, with a 1,385% increase in message volume.