Hemophilia Community Engagement Lead

At Pfizer, we apply science and our global resources to bring therapies to people that extend and significantly improve their lives. For 175 years, patients have trusted Pfizer to discover, develop, and deliver medical breakthroughs that change patients’ lives. Today, we collaborate with patients and patient advocates to help develop breakthrough treatments and innovative approaches to address patient challenges. These partnerships have helped to increase patient engagement in research and development, diversify clinical trials, develop patient-friendly educational materials and patient support programs, and elevate priority policy and social impact issues. To support Pfizer’s vision for its hemophilia portfolio to transform the lives of people living with hemophilia through innovative treatments and comprehensive care solutions,the Pfizer Specialty Care Patient Solutions team is building an innovative patient support program for the strong and growing hemophilia portfolio to support patient journeys. Putting patients first is at the core of Pfizer’s vision for Patient and Advocacy Engagement.

The HemophiliaCommunity Engagement Lead (CEL)role is a field-based community-facing colleague who serves as the main point of contact for patient organizations including local, regional, and national Patient Advocacy Groups (PAGs) and Community Partners (CPs). The primary function of the CEL is to liaise with PAGs and CPs and educate and collaborate with their organizations on programs, and other support resources availablethrough Pfizer for the patients who rely on these important support networks. The role reports directly to the Rare Disease US Patient Affairs Senior Director.

Why Patients Need You:

• For many patients with rare diseases like hemophilia, the patient advocacy groups, and community organizations are a patient and their caregivers’ first point of connection, support, and trust upon initial diagnosis. Therefore, these advocacy organizations play an integral role in the education, support, and physical and mental well-being of patients who share common health issues.

• The CEL is the main point of contact for PAGs that are focused on hemophilia, and CPs that may have a significant number of members who have (or are suspected of having) hemophilia.  In collaboration with cross-functional partners, the CEL will partner with PAGs, CPs, that provide support to patients seeking care.

• Individuals living with hemophilia and their caregivers may face various challenges in diagnosis, understanding treatmentoptions, obtaining, and maintaining treatments.  

• Proper disease education and awareness can equip patients to have the appropriate discussions with their healthcare providers.  

• Particularly in hemophilia with many new emerging therapies (e.g., Gene Therapy, TFPI class), patients need to understand the various options from Pfizer’s portfolio that they can then discuss with their healthcare providers to determine what is best for them.

• What You Will Achieve:

• Define the strategy to increase patient engagement with the Patient Navigator and implement it with prioritized PAGsand with cross-functional partners, as appropriate.

• Gathers and synthesizes market insights within their regions and leads priority assessments with PAG/CP Executive Directors to anticipate, identify and interpret trends that lead to the translation of trends into solutions/responses for patients.

• Collaborate with Pfizer’s State and Government Affairs Team to support PAGs with state and local policy initiatives.

• Understand and leverage the capabilities of local PAGsto develop programs and events that can connect patients & caregivers to Pfizer’s Hemophilia Patient Navigator (PN).

• Manage budgets, sponsorships, eventsand collaborations with local PAGs that provide disease and brand education to help connect patients to Pfizer’s Hemophilia Patient Navigator.

How You Will Have Impact: 

• Identify collaborative partnerships and regional initiatives where we could broaden our reach to the hemophilia community aligned to disease education, access to care and empowerment.TheCELwill be responsible for the management of programs / events, developing and executing long-term partnership plans. 

• Conduct needs assessments with PAGs / CPs to identify areas of primary focus and to determine points of alignment with Pfizer goals and objectives.

• Responsible for leading quarterly reviews to leadership, articulating our impact in supporting patients. 

• Help build a market analysis for a large territory to effectively partner with customers and address significant customer/ marketplace dynamics.

• Identify key stakeholders, PAG/CP capabilities, and the local market as it relates to capacity building and the needs of the RD Community

• Builds rapport with key decision makers and is seen as a strategic resource.

• Understands and strictly complies with all relevant regulations and policies. All activities are executed in close collaboration with legal and compliance to ensure that they are implemented in a thoughtful and compliant manner that meets Pfizer’s high standardsof conduct.

• Provide local insights to inform HemophiliaBrand Team on thedevelopment of educational materials for patient engagement and patient support resources that fill needs within the patient community

• Maintain awareness of the government landscape within the hemophilia communities on local, regional, and national levels.

• Compliantly collaborate with HemophiliaSales Managers (HSM), as needed, to ensure that the integrated patient offerings align with intended objectives in the context of local market dynamics.

• Assist in effectively and compliantly communicating insights into the changing competitive landscape within Rare Diseaseand hemophilia to appropriate cross-functional colleagues.

• Schedule and organize travel in a timely, thorough manner and order all required materials for local, regional, and national events.

• Effectively maintain administrative responsibilities, i.e... expense report (Concur), budget tracker, activity tracker, Centris (initiating & closing a program), PN / Specialty Patient Solutions team calendar.

• Actively collaborate with local cross-functional partners to share market insights, learnings from programs & events, and continue proactive engagement with patient organizations 

• Regional partnerships across PAGs and CPs to bring the community together on larger issues that impact access to care. 

Outcomes:

Defined, measurable goalsshared across cross-functional (CF)teams, where appropriate. (HQ & Field: Commercial Excellence, Enablement, APRDs, HUB, PHAM)​The CEL role will be held accountablethrough distinct metrics and KPIs, utilizing shared CF partner PLI goals and PAG survey results. Coaching reinforcement through aCoach

Basic Qualifications

• B.S. or B.A. Degree is required

• Minimum 7-10 years pharmaceutical industry or related experience -preferably in Rare Disease and/or working with patient advocacy groups / organizations

• Account management experience; to include demonstrated experience partnering with external organizations to pull through key initiatives that align with internal business objectives 

• Experience demonstrating exceptional communication, listening, and platform trained speakers 

• Headquarters knowledge and experience and proven record working with cross functional HQ teams and business units

• Demonstrated ability to work in a highly regulated environment and adhere to strict company compliance guidelines and procedures 

• Proven track record of collaborating broadly with a diverse range of customers, clients, and stakeholders

• Experience in responsible business practices and compassionate communication both written and spoken

• Strong strategic skills including effectiveness in identifying and addressing major strategic challenges (e.g. shifting market environment) and the ability to balance short-term needs with long-term vision.

• Understands and navigates compliance guidelines aligned to working with MO&A (Medical) and ADM Teams (State Gov)

• Requires leading without positional authority at all levels

• Excellent communication skills, both written and verbal – bilingual a plus

• Excellent presentation skills to address leadership and external audiences

• Exceptional relationship building skills with a range of stakeholders (patients, EDs, caregivers)

• Strong attention to detail, organizational and business skills

• Ability to work in a team environment

• Ability to travel at a minimum of 50%; scope of events is primarily on weekends and evenings

• Valid US driver’s license and driving record in compliance with company standards.  Any DUI/DWI or other impaired driving citation within the past 7 years will disqualify you from being hired.

Preferred Knowledge & Skill Sets Desired

• Significant experience in the Rare Disease marketplace, with an understanding of how to frame complex challenges to the organization with a solutions orientation

• Forward looking and results oriented with effective planning, prioritization and organizational project skills

• Track record of leading and managing complex projects to deliver improved outcomes

• Demonstrates the ability to build strategic partnerships.

• State and local policy initiative work

• Manage and maintain budgets that align with brand strategy

• Conducts integrated accounting meetings monthly to align with other internal business colleagues

• Outstanding collaboration and networking abilities with PAGs / CPs

• Knowledge of the Rare Disease community

• Knowledge of Centris, Concur, Budget tracking, and an understanding of Sponsorship processes 

• Adherence to regulatory and compliance standards

• Certain areas require bilingual- proficiency in speaking and reading