Senior Data Engineer

From anecdote to evidence: how patient insights drive innovation and success for Rare Disease brands. Why "insomnia" vs. "disturbed nocturnal sleep" makes all the difference in narcolepsy care. Clinical definitions and brand messaging often fail to capture the invisible burdens of living with a rare disease. This disconnect can lead to misdiagnosis, stigma, and missed opportunities to shorten the patient's journey to the right treatment. Patient insights reveal critical gaps between clinical trial protocols and real-world patient experiences. By collaborating with Swoop Communities by MyHealthTeam on multiple studies involving social listening and patient surveys, Avadel expanded their understanding of patient language and experiences. At the 2026 Rare Disease Summit, former SVP of Medical Affairs at Avadel Jennifer Goodman and Co-founder and President of MyHealthTeam and Swoop Chief Patient Officer Eric Peacock discussed the critical importance of listening to patients and the research studies informing medical affairs strategies, clinical trial design, and commercial approaches. Watch the Video "There is nothing that beats hearing directly from people who are living with a rare disorder," Jennifer said. One research project debunked a common narcolepsy misconception: That Narcolepsy Type Two (NT2) is less severe than Narcolepsy Type One (NT1). The findings challenged the status quo for the therapeutic area and unlocked better treatment options for patients. In another research project, Avadel discovered the importance of using the same lexicon as patients. While the manufacturer and healthcare providers (HCPs) used the term "disturbed nocturnal sleep", many patients participating in surveys found it foreign. However, when using the colloquial term "insomnia," patients identified with the symptom more clearly. This disconnect in terminology may have led to delayed diagnoses, as primary care physicians might not immediately associate insomnia with narcolepsy. "It was eye opening to the clinicians that our field medical team engaged with," Jennifer said. "And it was really validating to the patient community because they felt like they weren't being heard when they would talk about that symptom." Alignment starts with the true patient experience. Beyond the research findings, Eric and Jennifer shared how aligning medical affairs and brand teams around the true patient experience can improve diagnosis, adherence, and care across any therapeutic area. "My philosophy in leading medical affairs has always been that you have a responsibility to the community to continue to generate data that's going to be meaningful to clinicians who are making prescribing decisions that will impact patients and meaningful to the patient community," Jennifer said. "And that is one of the places where our partnership was so lovely. We were able to continue to generate meaningful data." By making the patient voice part of a manufacturer's organizational DNA and bridging the gap between medical affairs and commercial teams through evidence-based patient research, Swoop Inc. can improve patient experiences and health outcomes. Transforming Omnichannel Swoop is a market leader in privacy-safe, award-winning omnichannel healthcare marketing solutions. Its platform connects patients, HCPs, and brands at scale across all channels, delivering unmatched engagement and proximity to patients throughout their health journey. By combining AI-driven technology with real-world data (RWD), first- and zero-party data, and engagement data, Swoop empowers pharma marketers to make faster, more precise decisions that improve patient outcomes.

Putting people first: Swoop earns 2026 Best Places to Work recognition. At Swoop, Swoop Inc. believe delivering for patients starts with empowering its people. NEW YORK, March 11, 2026 - The Business Intelligence Group recognized Swoop, a leader in AI-driven, data-powered, and privacy-compliant omnichannel healthcare marketing, as one of 2026's Best Places to Work. This honor recognizes Swoop's innovation-driven culture, its unwavering commitment to employee empowerment, and its continued growth within the healthcare space. "At Swoop, our mission is simple: put the patient first. But that mission starts with our people," CEO and Co-founder Ron Elwell said. "When our team feels inspired, valued, and empowered, that energy flows directly into the innovative work that drives better patient outcomes. Being recognized on the 2026 Best Places to Work list is a testament to every person at Swoop who shows up each day with creativity, purpose, and heart. This honor belongs to them - and it makes me incredibly proud of what we're building together." Swoop earned this distinction through overwhelmingly positive responses to a voluntary, anonymized employee survey regarding company leadership, professional development, and workplace environment. "Every number came directly from their employees. That is what makes this recognition meaningful, it is a referendum, not a resume. And the 2026 winners passed that referendum with results that are genuinely impressive," Chief Recognition Officer at the Business Intelligence Group Russ Fordyce said. This is the second consecutive year earning the BIG Best Places to Work designation for Swoop, and the award builds on a streak of industry recognition for the company. Last month, Swoop earned two Best of 2025 HealthTechNode Awards - one for Best in AI-Powered Health Solution for its Predictive Adherence Audiences and another Best Health Equity or Accessibility Innovation for its en español patient Communities. These achievements highlight Swoop's role in helping improve patient outcomes through privacy-safe, effective solutions. About Business Intelligence Group The Business Intelligence Group was founded with the mission of recognizing true talent and superior performance in business.These awards are evaluated by business executives and practitioners who reward organizations that deliver real, measurable results rather than polished marketing narratives. Marcella Milliet Sciorra Chief Marketing Officer [email protected] Transforming Omnichannel Swoop is a market leader in privacy-safe, award-winning omnichannel healthcare marketing solutions. Its platform connects patients, HCPs, and brands at scale across all channels, delivering unmatched engagement and proximity to patients throughout their health journey. By combining AI-driven technology with real-world data (RWD), first- and zero-party data, and engagement data, Swoop empowers pharma marketers to make faster, more precise decisions that improve patient outcomes.

Best of 2025 HealthTechNode Awards recognizes Swoop for AI and Accessibility. Predictive Adherence Audiences and en espanol communities earn awards. NEW YORK, February 25, 2026 - Swoop, the leader in privacy-compliant, AI-driven healthcare marketing solutions, received two honors in the inaugural Best of 2025 HealthTechNode Awards. Swoop earned the title of Best AI-Powered Health Solution for its Predictive Adherence Audiences andBest Health Equity or Accessibility Innovation for its en español patient Communities. Both awards demonstrate Swoop's commitment to improving health outcomes. While traditional pharmaceutical marketing often relies on retrospective analysis - reacting only after a patient has already lapsed in treatment - Swoop's Predictive Adherence Audience solution uses privacy-safe data and AI technology to find patients most likely at risk of non-adherence before it occurs. This proactive approach ensures that coordinated, consistent messaging reaches the right people at critical decision points, supporting earlier intervention and better care continuity. This is the fourth award for Swoop's Predictive Audiences, building on recognition from the Stevie Awards for Technology Excellence, Business Intelligence Group Innovation Awards, and PM360 Innovation Awards. Moving beyond simple translation, MyHealthTeam, a Swoop company, builds fully localized, moderated patient communities designed around language, lived experience, and trust. myHIVteam en español, myCrohnsandColitisTeam en español, and myMASHteam en español provide medically reviewed resources, meaningful peer-to-peer engagement, and a safe environment for patients navigating complex and often stigmatized conditions. By centering cultural relevance and community connection, these Communities enable patients to better understand their conditions, reduce isolation, and communicate more effectively with healthcare providers. myHIVteam en español took home a gold medal from the Digital Health Awards last spring for creating a welcoming online space for Spanish-speaking individuals affected by HIV. The Best of 2025 HealthTechNode Awards recognize organizations that demonstrate meaningful impact, innovation, and leadership across the healthcare ecosystem. Winners demonstrate an ability to address critical industry challenges through thoughtful technology design and measurable real-world outcomes. "This inaugural Best of 2025 program reflects the depth and momentum we are seeing across health technology right now," said Jordan Hayes, HealthTechNode Awards Coordinator. "Each winner represents a distinct approach to improving care, access, or outcomes, and together they show how innovation is translating into real progress across the industry." Transforming Omnichannel Swoop is a market leader in privacy-safe, award-winning omnichannel healthcare marketing solutions. Its platform connects patients, HCPs, and brands at scale across all channels, delivering unmatched engagement and proximity to patients throughout their health journey. By combining AI-driven technology with real-world data (RWD), first- and zero-party data, and engagement data, Swoop empowers pharma marketers to make faster, more precise decisions that improve patient outcomes.